AJ's STORY
TRANSPERANCY
RESILIANCE
INCLUSION
SUPPORT
OPTIMISM
MEMORIES
YOUNIQUE
Let's Take This Walk,
Together
Feel free to explore blogs, videos, and socials to learn more about AJ and who he is. You can also create your own profile under the 'sign up' tab. This will allow you access to post blogs, videos, and photos of your own! Welcome to the community.
At Walk4AJ18, I believe that knowledge can be spread through the power of connection. Since the birth of AJ in 2023, I have been endlessly researching his rare chromosome disorder. As I continued to read, I realized AJ is not as they explain in the literature. So, I am deciding to write my own literature, one that does not have stigma or boundaries defined by text. My mission is to create blogs that raise awareness and help support others facing similar challenges.
I understand it can all be so overwhelming. I too have had my share of tears, pain, sadness, and just outright confusion for what the future looks like. I will provide a safe space for families, caregivers, and people who want to share their stories. I welcome you with open arms, offering a compassionate and non-judgmental environment where you can connect with others who may have had similar experiences.
My family has a story to tell. Walk with us through Aj's diagnosis of deletion of chromosome 4 & duplication of 18. I intent to publish content that is real for AJ and my family as we navigate through.
Aj was born naturally at 36 weeks' gestation on July 5, weighing 6 lbs. and 4 ounces. He came out unresponsive, but after multiple butt pats, a heat lamp, and some suctions to the mouth he came to. Nurses quickly accessed AJ and rushed him to the NICU after observing some concerns. He had small disformed ears, a recessed chin that caused major breathing complications, overlapping fingers, rocker- bottom feet, and a small head. Between 3 hospitals he spent 115 days in the NICU, underwent one major and two minor surgeries, 2 procedures, and fought off 4 deadly infections. He has been so strong throughout his short life and I feel so blessed to be his mommy. Since coming home, he has been smothered in love and affection and has a great outreach program that keep track of his health and development. He has been able to reach milestones that I was told he may never live long enough to achieve.
Mission
Building Community
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Inclusion and Optimism:
Embracing Differences on walk4aj18
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Celebrating Milestones:
Finding joy in the small victories
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Uniqueness in Adversity:
Embrace your individuality. We value diversity and believe that everyone's journey is unique.
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Building a Supportive Community:
Connecting with Others on walk4aj18
Join our online community: The website features a blog where individuals can share their personal experiences and connect with others. Take the time to read through the blog posts, leave comments, and engage in conversations. By actively participating in the online community, you can find support from others who have faced similar situations. Whether it's a setback, small victory, or a major achievement, share your story here. We have the ability to uplift and inspire one another. If you're feeling overwhelmed or in need of support, don't hesitate to reach out to myself or others on walk4aj18.
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AJ's life has been full of ups and downs since birth. AJ has been growing and learning every day. With each passing month, he has faced new challenges and overcome them with determination and resilience. Despite the obstacles, AJ has always found a way to keep moving forward and make the most of every moment.
Alexis Carpenter- Davis
"Discovering a loved one's struggles can be overwhelming and isolating. For me, I felt at fault and battled with severe PPD and PPP. Know that you are not alone. In sharing AJ's story, I hope to offer support and understanding to those who may be going through similar experiences. In doing so, I also share my own journey of navigating complex emotions and self-doubt. Remember, there is always hope and help available."
"Life and death, is in the power of the tongue"
Proverbs 18:21
